Rightyho, it is time for an update on the situation.
Some members on here are aware of this latest news, and it does not make for easy reading.
Recap: I managed to make the most of the Winter months with helping a builder mate of mine, who was working next door to my place, with a major building and garden make-over. I initially was just holding one end of a tape measure, but I soon got into using a chop saw making rafters and fixing up cladding etc. Anyway, it was better to be active rather than sitting indoors out of the cold; it has been great company and camaraderie.
Recently however, I began to loose my stamina and felt weak and tired very quickly. I had to sit down often or go indoors, and my mate was very supportive and understood that I was struggling, when all I wanted to do was crack on with helping him - for my benefit as well
as his.
Meanwhile, the NHS began to up the ante with regards to my Healthcare. I was assigned a Sue Ryder (Macmillan) Doctor, who has been an absolute boon, and speaks to me by Zoom Video call. She listens very carfully to me and can prescribe medication, for controlling the symptoms. My previous Macmillan Nurse from 2003 has also been re-assigned to me, and my G.P. Practice have put a Care Package in place, with a hot line to call if I need anything in an emergency.
Onwards; I had a telephone Consultation with Oncology at the RBH earlier this month, and they gave it to me straight, which I do appreciate. They have offered more Chemotherapy treatment, but it has only a very small chance of being effective with holding the Cancer back, but not curing it. I would also be suffering with the unpleasant side effects of the Chemo, just as we are entering the Summer period.
It is easier if I pop the key part of the follow-up letter on here, then I don't need to type it out, which will be somewhat upsetting:
I spoke to Oncology again today, and have declined further Chemotherapy treatment, so I will be handed over to Palliative Care now, who can look after me, and keep me comfortable.
I intent to make hay while the sun shines, and hope to get out on the Kawaskai at some point - I have ridden this year, but I struggled with fatigue, and couldn't concentrate very well on enjoying the ride. I have been prescribed Dexys again, which to be honest are great fun - I wish I had access to that stuff back in the day
.
Cheers,
Pip
