Pipmeister
Senior Retro Guru
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Thank you all very much.
I have now had two very heavy meetings with my newly assigned Sue Ryder (Macmillan) Palliative Nurse Specialist. There was also a Consultant Specialist in Palliative Care present. The meetings were designed to set out a plan of action regarding my final days. This was documented on a “ReSPECT” Form and signed by the Consultant. I have agreed to no CPR / Do Not Resuscitate, and Medication based on pain relief, at the expense of sustaining life. This may sound somewhat premature, but the Consultant in particular was urging me to get things moving now, rather than leaving it until it becomes more urgent. They’re behaving as if they know something that they are not telling me regarding how the Cancer is developing. I can’t see how they would as my Consultant Oncologist hasn’t yet arranged a C.T. Scan for my post 6 cycle review.
I made it clear that I want to end up in Malvern at my sister’s place, which will take some arranging via a different Heath Authority, but they have now spoken to her and things are in motion.
They asked a couple of times what my biggest fear is, which I assume I have answered accurately. I don’t want to be hanging on for months at the end in discomfort. They mentioned pain relief, and went on to discuss how I may feel when the Cancer develops as I believe it is in four sites including my Liver. They asked what I would be able to do to keep happy and positive when I can no longer manage to be active.
Like I said, they were heavy meetings, but I reckon I coped pretty well on my own at both.
Anyway, with all that in mind, it now seems the correct decision to move my bike collection on in the way that I have. I can still ride the remaining 4 bikes for now – see signature. Rather unusually for me, I haven’t been out properly for a couple of months now, but maybe the warmer weather will get me out there. I have however ridden the Kawasaki twice so far this week, and did the furthest distance on Wednesday since I bought it. I wanted to see how I will handle sitting at the speed limit for a long period, as I plan to visit a few places soon.
Pip.
Thank you all very much.
I have now had two very heavy meetings with my newly assigned Sue Ryder (Macmillan) Palliative Nurse Specialist. There was also a Consultant Specialist in Palliative Care present. The meetings were designed to set out a plan of action regarding my final days. This was documented on a “ReSPECT” Form and signed by the Consultant. I have agreed to no CPR / Do Not Resuscitate, and Medication based on pain relief, at the expense of sustaining life. This may sound somewhat premature, but the Consultant in particular was urging me to get things moving now, rather than leaving it until it becomes more urgent. They’re behaving as if they know something that they are not telling me regarding how the Cancer is developing. I can’t see how they would as my Consultant Oncologist hasn’t yet arranged a C.T. Scan for my post 6 cycle review.
I made it clear that I want to end up in Malvern at my sister’s place, which will take some arranging via a different Heath Authority, but they have now spoken to her and things are in motion.
They asked a couple of times what my biggest fear is, which I assume I have answered accurately. I don’t want to be hanging on for months at the end in discomfort. They mentioned pain relief, and went on to discuss how I may feel when the Cancer develops as I believe it is in four sites including my Liver. They asked what I would be able to do to keep happy and positive when I can no longer manage to be active.
Like I said, they were heavy meetings, but I reckon I coped pretty well on my own at both.
Anyway, with all that in mind, it now seems the correct decision to move my bike collection on in the way that I have. I can still ride the remaining 4 bikes for now – see signature. Rather unusually for me, I haven’t been out properly for a couple of months now, but maybe the warmer weather will get me out there. I have however ridden the Kawasaki twice so far this week, and did the furthest distance on Wednesday since I bought it. I wanted to see how I will handle sitting at the speed limit for a long period, as I plan to visit a few places soon.
Pip.
